Newsletter June 2021

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New Limb-Girdle Muscular Dystrophies Classification

This WEBINAR discusses the new classification of LGMDs and maps the current classification to the previous one, explaining the rationale of the updates that were done. It includes therefore a ample discussion of disease causes, mechanisms and ontologies to enable a smoother transition to the new classification system for LGMD sub-types that hopefully is most…

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July's Summer School Webinar Series

The euro nmd webinar series of July will be devoted to some of the lectures given during the 2021 translational summer school and involving a remarkable list of experts.

Our programme includes:

July 2021

Thu Jul 1 – 16:00-17:00 CET

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Clinical Research with databases: The Basics & Beyond Workshop in clinical epidemiological research for ERNs

Research on rare conditions can be a great challenge, both practical and methodological. To counteract small study populations with a rare disease, large, collaborative, international datasets and registries are currently being erected for multiple disease groups. Analyzing, and subsequently drawing conclusions based on these datasets requires…

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ENMC Themed Workshops: “Post-Covid-19: Issues and opportunities for the neuromuscular field!”

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ENMC has started a new initiative of “Themed Workshops”.

Due to the fact that we are facing a new period after Covid-19 and because of the urgency to learn from this pandemic, the ENMC proposes this year the following theme: “Post-Covid-19 issues and opportunities for the neuromuscular field”. The sub-title is: “Learning experiences from the Covid-19 pandemic…

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June 2021 EJPRD Newsletter

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Themes of the EJPRD June 2021 Newsletter:

Resource Finder Demonstration

Resource Webinar: Human Pluripotent Stem Cell Registry (hPSCreg): 21st June 2021

ERN Workshop: Clinical Epidemiological Research—The Basics and Beyond: registration deadline 18th June 2021

Nominations now open for the EURORDIS Black Pearl Awards 2022

Networking Support Scheme (NSS) Funding Opportunity:…

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The website of the International Myositis Society: imyos.org

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The International Myositis Society (iMyoS) has been established in 2019. The main goal of the Society are:

Support the development and harmonization of diagnostic criteria & standards of care for myositis and help to implement those in all other international & national societies including, but not limited to AAN, EULAR, ACR, EAN,…

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