|
| |
Training needs in rare neuromuscular diseases in Europe: an EURO-NMD Survey.
EURO-NMD is running a survey to map the training needs in rare neuromuscular diseases in Europe for planning new educational activities that are better tailored to its users and their needs. As of today, about 160 respondents (61% females) from 27 countries completed the survey, including 141 respondents from 18 EU countries (15 EURO-NMD countries).…
|
|
|
|
|
|
| |
ERN Euro-NMD Exchange Programme 2021-2022
Following the ERN’s motto: “knowledge travels, not the patient” we are pleased to announce that the EU is funding an Exchange Training Programme. Through this programme your travel costs will be financed, and you will receive a daily allowance of 200€ per working day for your accommodation, travel insurance and subsistence costs. This Exchange Programme…
|
|
|
|
|
|
| |
Treat-NMD July 2021 Newsletter
 | |
The TREAT-NMD Alliance are organising the 7th international conference focussing on translational medicine in inherited neuromuscular diseases to be held from 15th to 17th June 2022 in Vancouver in Canada. The website dedicated to the 2022 conference will be launched at the end of July. The website provides information on the conference…
|
|
|
|
|
| |
“Pluripotent stem cells for rare disease research: banking, data, application”: an EJPRD training course
As part of the training activities proposed by the EJP RD, a 3-day training course titled “Pluripotent stem cells for rare disease research: banking, data, application” is being organised by Fraunhofer Institute for Biomedical
Engineering and Fondazione Telethon. The course aims at providing an overview on how human pluripotent stem cells can be used as research…
|
|
|
|
|
|
| |
ERN-RND for Rare Neurological Diseases July 2021 Newsletter
In ERN-RND July newsletter read about: - ERN-RND Annual Meeting took place online on 30 June and 1 July with more than fifty participants from across Europe.
- ERN-RND centres and ePAGs introduction videos
- Upcoming joint webinars by ERN-RND, EURO-NMD, EAN
- EURORDIS Black Pearl Awards – call for nominations
- and many…
|
|
|
|
|
|
| |
First CPMS Grand Round: access on demand to the recording on CPMS
The First CPMS Grand Round was a success according to the feedback that we have received and that we will post on this site very soon. In the meantime we want to explain how to access the recorded video from the Grand Round. As these are sessions that are for Professionals we have not…
|
|
|
|
|
|
| |
Results of Survey: COVID19 Hospital Feedback
 | |
One year ago, the EURO-NMD has launched a survey for Hospitals to feedback the situation regarding COVID-19 and the Neuromuscular patients. We received 24 Surveys that were complete and accurate. from different countries: Italy (9), Netherlands (3), Spain (1), Cyprus (1), Germany (2), Belgium (3), Estonia (1), France (1), Czech Republic (1) and Slovenia (2).…
|
|
|
|
|
| |
Feedback for 2021 webinars
 | |
The following graphs reflect the totality of answers according to people’s grading of their satisfaction with the different aspects of the EURO-NMD webinars of 2021.
Click here to see the content of the forms that were used: ERN Euro-NMD Webinar Feedback – Google Forms
…
|
|
|
|
|
