Newsletter September 2021

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MYO-MRI Imaging in Neuromuscular Disease Conference 2021

The conference program will feature internationally-recognized keynote speakers highlighting developments and advances in key aspects of muscle imaging. The programme will feature the following:
Introduction to Muscle MRI: Mapping Disease Activity; Quantifying the Chronic Degenerative Changes
Introduction to Clinical NMD
Poster Sessions
The programme also features hot topic talks and Q and A.
The conference…

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ERN Euro-NMD Exchange Programme 2021-2022

Following the ERN’s motto: “knowledge travels, not the patient” we are pleased to announce that the EU is funding an Exchange Training Programme. Through this programme your travel costs will be financed, and you will receive a daily allowance of 200€ per working day for your accommodation, travel insurance and subsistence costs. This Exchange Programme…

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Treat-NMD July 2021 Newsletter

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The TREAT-NMD Alliance are organising the 7th international conference focussing on translational medicine in inherited neuromuscular diseases to be held from 15th to 17th June 2022 in Vancouver in Canada.

The website dedicated to the 2022 conference will be launched at the end of July. The website provides information on the conference…

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14th European Paediatric Neurology Society Congress 2022

The 2022 European Paediatric Neurology Society Congress will be dedicated to “Precision in Child Neurology” in Glasgow, UK from the 28th April to the 2nd May 2022. The EPNS Congress provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology, including basic science, diagnostic methods, and novel treatments.…

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New article on Journal of Neuromuscular Diseases about patient-led FAIR Data Efforts to facilitate Research and Health Care

The World Duchenne Organization and Duchenne Data Foundation have published their latest Research Article on the Journal of Neuromuscular Diseases and titled : “How Patient Organizations Can Drive FAIR Data Efforts to facilitate Research and Health Care”
It summarizes the presentations and discussions that took place in the second meeting on FAIR Data Sharing for…

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LGMD Awareness Day - 30th September 2021

Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is intended to be an annual collaborative effort to globally raise awareness of individuals living with limb-girdle muscular dystrophy.
The seventh annual “Limb-Girdle Muscular Dystrophy Awareness Day” will be celebrated worldwide on September 30th, 2021.

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