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Newsletter January 2021
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ERN acknowledgement in ERN members' publications/communications

ERN acknowledgement in ERN members' publications/communications ‌

Please remember that if you publish on the name of an Institution that is Member of the ERN Euro-NMD you are expected to acknowledge the ERN in the paper.

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Survey on patients organisations’ knowledge and position paper on screening for inherited neuromuscular diseases in Europe

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A new Euro-NMD publication is now available preprint on The Orphanet Journal of Rare Diseases about  European patients organisations‘ knowledge and position paper on screening for inherited neuromuscular diseases. The need for this paper arises from the recognition that screening directives and access to the different techniques is not uniform across Europe. However,…

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Current list of 2021 Euro-NMD Webinars

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EURO-NMD provide educational webinars to increase the knowledge around different specialist areas related to the neuromuscular field, in collaboration with the European Reference Network for Rare Neurological Disorders (ERN-RND) and the European Academy of Neurology (EAN).

Our list of webinars in 2021 is now available

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Applications open for the ENMC Mid-Career Mentoring Programme

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ENMC has developed a new Mentoring Programme. The ENMC Mid-Career Mentoring Programme has been developed for people who wish to seek mentoring in order to become independent researchers and/or potential future leaders in the NMD field. 

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EJPRD Information Webinar on the Joint Transnational Call 2021

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The EJP RD is glad to invite you to the information webinar organised for potential applicants to the Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease”.

The webinar will take place online on February 2nd, 2021 3:00 – 4:30pm CET.

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Treat-NMD Expert Masterclass on Limb Girdle Muscular Dystrophy, 29th and 30th April 2021

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Treat-NMD (treat-nmd.org) is organising a virtual masterclass of LGMD in Europe, following the success of a first masterclass last September in the USA. It will take place online on the 29th and 30th April 2021 and will have speakers from all over Europe.

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