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Euro-NMD Bursaries 2021
To ensure equity of care for patients with rare neuromuscular diseases across Europe, the ERN EURO-NMD is strongly committed to boost Training and Continuous Education Programmes.
Our bursary scheme is open to young clinicians/researchers under the age of 40 years old that belong to one of the EURO-NMD healthcare providers.
We will support young clinicians/researchers…
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Setting up a FAIR registry for Euro-NMD
Watch this video-presentation by Peter-Bram van ‘t Hoen, where he shares his first experiences and plans for setting up an European Reference Network (ERN) for neuromuscular disorders. It includes useful explanations about concepts such as FAIR data and “FAIRification”.
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ProDGNE Kick-off Webinar 3rd June 2021, 6pm CET
ProDGNE (https://sites.fct.unl.pt/prodgne/home) has obtained Horizon 2020 co-funding under the EJPRD call on preclinical research. The project will unify European and Canadian efforts to develop an innovative therapeutic approach for GNE Myopathy.
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Survey on education needs in rare Neuromuscular Diseases
The European Reference Network (ERN) on Rare Neuromuscular Diseases (EURO-NMD) is aiming at remodelling its training offers and wants to hear from the community it serves. ERNs are continuously working to improve the training and educational offers implemented by the networks to overcome the gap in the existing curricula for rare diseases training. This…
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As we become aware of future meetings being rescheduled, cancelled or moved to an online format we will make the appropriate adjustments to the information on our website.
At this very uncertain time we are trying to ensure we capture all changes but we would ask if you know of any changes to meetings that are of interest to the neuromuscular community to let us know so we can help inform the whole community - info@ern-euro-nmd.eu
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European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy 26 - 28 May 2021 -registration open
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As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020 (http://solve-rd.eu/) on genetic research, the Health Economics Team of the Economics Laboratory of Dijon (University of Burgundy) organises the “European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy” from May 26th to 28th, 2021. We are pleased to announce…
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EAN decides to hold virtual congress in June 19-22 2021
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Due to the continuing COVID-19 pandemic the European Academy of Neurology has decided to go virtual again for the 7th EAN Congress on June 19-22, 2021, originally to be held in Vienna.
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WMS Congress 21-25 September 2021 is going virtual.
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Building on the recent success of the WMS 2020 Virtual Congress and the ongoing uncertainty around the COVID-19 situation the Executive Board of WMS has taken the decision to move forward with a virtual congress for 2021. We therefore look forward to welcoming you on-line again for 2021! Further updates in the coming weeks and…
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