21 May 2020

ENMC highlights workshop report

In 2018, ENMC held a special workshop on how to involve patients more in the decision making about research and care management of neuromuscular conditions. The ENMC White paper resulting from this meeting came out just when the Corona crisis started, understandably at this time all focus was on the emerging pandemic. Given how much time and effort went in to the workshop and following report we feel the time is now right to highlight the White paper (and associated publications) once again in the hope that they will help Patient Organitions in increasing patient involvement where relevant and desirable in their own country.