Tuesday 3rd July

9.00 – Feedback from TACT review session – coordinated by Annemieke Aartsma-Rus


Session 2 – Clinical trials


9.30 – Introduction to clinical trials – Michela Guglieri


10.30 – Coffee


11.00 – Ethical discussion role play – moderated by Silvere van der Maarel, Becca Leary and Teresinha Evangelista


12.30 – Lunch


13.30 – Outcome measures – Anna Mayhew

14.30 – Showcase on outcome measure development and labelling and marketing – Annemieke Aartsma-Rus


15.00 – Coffee/tea


15.30 – Showcase on outcome measure development – Anna Mayhew

16.30 – TREAT-NMD tools to facilitate clinical trials – Michela Guglieri  and Becca Leary

17.30 – End of day 2


Faculty Dinner

supported by the

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern