Thursday 5th July

Patient communication workshop

9.00 – Importance of patient communication – Annemieke Aartsma-Rus

10.00 – 15.00 – Communication workshop by behavioral scientists

There will be two tea breaks and a lunch break

15.30 – How patients can help your research – ERN patient board representatives

19.00 – Network dinner

supported by the

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit