2 April 2020

EURORDIS urges immediate action and proposes concrete solutions

31 March, Paris – EURORDIS-Rare Diseases Europe is alarmed by reports from member organisations and individuals that people living with a rare disease are being discriminated against in critical care guidelines designed to steer emergency/ ICU doctors in the prioritisation of patients during the COVID-19 pandemic (documented in Germany,the Netherlands, Spain, UK and Switzerland, and based on non-documented reports from Belgium, France and Italy).