Press release following the rare diseases day and 1 year anniversary of ERNs – ERN-EURO-NMD

About EURO-NMD – & ERNs
Patient – engagement
Educational – resources
- RD-Connect Webinars
- Close
Guidelines – & protocols
Research – & clinical trials
Translational – Summer School
.
- Close
.
- Get in touch
  
  Please note: We can’t respond to individual patient cases from this form. Do not share any patient information through this email system.
  
  We will only use the information you send to us via this form to deal with your particular question. We will not add any details left here to our mailing lists and it will not be shown on our website.
  
  Once 'we' have been in touch with you we will delete your details from the system.
  
  'We' means the EURO-NMD Secretariat who are in overall charge of the website and its content.
  
  Are you happy with us storing the details below whilst we deal with your enquiry? (required)
  
  Yes, I'm happy for you to keep my data for this purpose
  
  Your name(required)
  
  Your email address(required)
  
  Subject(required)
  
  Your message(required)
  
  Are you human?(required)
  
  Please note: We can’t respond to individual patient cases or information sent to us via this form.
  
  This field should be left blank
  
  Please wait...
- Close

Press release following the rare diseases day and 1 year anniversary of ERNs

28 March 2018

The computer networks are up and running and rare disease patients are starting to enter their data. A year after their launch, the European Reference Networks are looking ahead to what it will take to truly perform their mission: connect patients with the Continent’s top experts, no matter where they live.

Download the press release in PDF format

Upcoming events

View complete list of events

Our platforms

Clinical Patient Management System
13 Jul 2017
Collaborative platform
13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“