Gene Therapy webinar series: Episode 4 – May 14th – 16:00 CEST – European Reference Network

Gene Therapy webinar series: Episode 4 – May 14th – 16:00 CEST

10 March 2023

We’re happy to announce our upcoming webinar series on Gene Therapy co-organized by EURO-NMD, ERN-RND, for rare neurological diseases, ERN EpiCARE, for rare and complex epilepsies and European Academy of Neurology (EAN), where we’ll delve into the latest advancements and breakthroughs in this interesting field. Click here to register! …TIMESLOT: 14 May 2024 16:00 – 17:00 CEST …THEME: “N-of-1 to many personalized therapies” (hosted by ERN EURO-NMD) …PRESENTER(S):

Terry Pirovolakis (Founder of CureSPG50 and Elpida Therapeutics)

Terry Pirovolakis, co-founder of CureSPG50, confronted his child’s SPG50 diagnosis in 2019. Through successful fundraising, he led ground-breaking research, treating three children within three years. Pirovolakis established Elpida Therapeutics, a corporation with a non-profit approach, focusing on gene therapies for ultra-rare conditions. Collaborating with industry leaders, Elpida targets SPG50, CMT4J, and plans to address three more diseases in 2024, utilizing profits to sustain programs. Pirovolakis extends his impact by supporting foundations, providing Gene Therapy 101 classes, and engaging in collaborations, all centered on the goal of saving as many children as possible.