5 June 2021

WEBMASTER & COMMUNITY MANAGER (M/F)

Background information:

European Reference Networks (ERNs); aiming to facilitate discussion on complex or rare diseases and
conditions; are virtual networks involving healthcare providers from across Europe. EURO-NMD is one
of 24 European Reference Networks approved by the European Commission to enable equity of care
for patients with rare neuromuscular diseases (NMDs), forming a broad group of related disorders that
represent a major cause of mortality and lifelong disability in children and adults.

Purpose of the position:

You will be responsible for supporting EURO-NMD’s internal and external communications strategy,
writing and disseminating relevant content related to the activity, and responding to requests from
healthcare providers and patient representatives.