5 June 2021

WEBMASTER & COMMUNITY MANAGER (M/F)

Background information:

European Reference Networks (ERNs); aiming to facilitate discussion on complex or rare diseases and
conditions; are virtual networks involving healthcare providers from across Europe. EURO-NMD is one
of 24 European Reference Networks approved by the European Commission to enable equity of care
for patients with rare neuromuscular diseases (NMDs), forming a broad group of related disorders that
represent a major cause of mortality and lifelong disability in children and adults.

Purpose of the position:

You will be responsible for supporting EURO-NMD’s internal and external communications strategy,
writing and disseminating relevant content related to the activity, and responding to requests from
healthcare providers and patient representatives.

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern