John Walton Muscular Dystrophy Research Centre

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  44 191 241 8839  |     newcastle-muscle.org  |    info@ern-euro-nmd.eu

Launched in November 2014, the Centre brings together and consolidates Newcastle’s distinguished, international and world-leading record in research and care for neuromuscular diseases.

The team is made up of staff from both the Newcastle Hospitals NHS Foundation Trust and Newcastle University.

Under the umbrella of the John Walton Muscular Dystrophy Research Centre they work together towards the development and application of genomic and translational medicine to improve the health outcomes of people living with neuromuscular diseases.

As a group, they have developed a close and important link between research and clinical activities and we actively pursue new partnerships with other stakeholders such as patient organisations, regulators and pharma.

The John Walton Muscular Dystrophy Research Centre is structured around five important strands of activity – clinical care, clinical research, diagnostics, basic research and strategic partnerships and networking – but all are strongly interlinked and the work across these teams is key to our success and impact in the neuromuscular field.

Board representation

Professor Volker Straub

Professor Volker Straub was founding joint co-ordinator of TREAT-NMD and is an executive board member of the World Muscle Society. He is the deputy director of the Institute of Genetic Medicine and the director of the John Walton Muscular Dystrophy Research Centre, which is supported by Newcastle University and the Newcastle Hospitals NHS Foundation Trust.



As part of EURO-NMD John Walton Muscular Dystrophy Research Centre has been involved creation of the following poster(s).

Posters

Poster title - European Reference Network for rare Neuromuscular Diseases: EURO-NMD
Presented – November 2017
EURO-NMD 1st Annual Meeting - Freiburg, Germany.


As part of EURO-NMD John Walton Muscular Dystrophy Research Centre has been involved in the following presentation(s).

Presentations

An overview of EURO-NMD European Reference Network for Rare Neuromuscular Diseases
Presented on – 1 June 2017
Meeting – 17th Congress of the Italian Miology Association
Location – Syracuse, Province of Syracuse, Italy
How can EURO-NMD help develop and implement care guidelines for NMDs?
Presented on – 29 November 2017
Meeting – TREAT-NMD 5th International Conference
Location – Konzerthaus Konrad-Adenauer-Platz 1 79098 Freiburg im Breisgau Germany
An overview of EURO-NMD
Presented on – 30 November 2017
Meeting – EURO-NMD 1st Annual Meeting
Location – Münsterplatz 24, 79098, Freiburg im Breisgau, Germany
Good practices and multi-stakeholder collaboration in Guideline Generation, Revision, and Dissemination
Presented on – 6 December 2017
Meeting – RD-Action workshop for ERNs
Location – Istituto Superiore di Sanita, Rome, Italy
EURO-NMD: the European Reference Network for rare neuromuscular diseases
Presented on – 16 June 2018
Meeting – EAN 2018
Location – Praça das Indústrias 1300-307 Lisboa Portugal
John Walton Muscular Dystrophy Research Centre Logo

Location

Group membership

John Walton Muscular Dystrophy Research Centre participates in the following groups…
Specialised Groups
Muscle diseases
Peripheral Nerve Disease
Neuromuscular Junction Defects
Mitochondrial Diseases
Cross Cutting Specialised Groups
Neuromuscular Imaging
Neurophysiology
Neuropathology
Genetics
Advisory Boards
Ethics
Research
Education

John Walton Muscular Dystrophy Research Centre is registered with the Care and Trial Site Registry

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern