Hôpital Bicêtre, Hôpitaux universitaires Paris Sud AP-HP

Assistance Publique – Hôpitaux de Paris (AP-HP) is the largest university hospital centre in Europe, which includes 12 hospital groups located in the Paris region. Within these 12 groups, 39 hospitals provide care and management to 8 millions of patients each year. AP-HP offers a public healthcare service for all, 24 hours a day and coordinates 50% of the clinical research studies in France.

Pioneer actions have been conducted in France in the field of rare diseases: it is the first country in the European Union which set up and implemented national plans for rare diseases. France has introduced the organisation in “reference centres” gathering highly specialised experts and resources to coordinate a multidisciplinary care offer to patients presenting a rare disease. The reference centre also seeks to share best practices and educate professionals on rare disorders. Today, there are 133 highly expert centres accredited at the national level in France, 73 of them are within the AP-HP hospitals.

Paris-Sud university Hospitals is one of the 12 hospital groups of the AP-HP, composed of three hospitals: Antoine-Béclère in Hauts-de-Seine, Bicêtre and Paul-Brousse in Val-de-Marne. The hospital group offers a complete health care, characterized by strong complementarities in terms of pediatric-adult care, within the framework of hospital-university excellence. The reference centre of familial amyloid polyneuropathy (FAP) and other rare peripheral neuropathies is coordinated by Pr David Adams since 2005 and is located at Bicêtre hospital. It is specialized in peripheric neuropathies for more than 25 years with a clinical expertise and a technical platform in biology, genetics, immunology and pathology leading to diagnosis in more than 90% of cases. This centre develops new techniques for early diagnosis of peripheral neuropathies and participates to several international clinical trials. It is a member of the French nati! onal net work for rare neuromuscular diseases FILNEMUS.

Board representation

Professor David Adams

Prof David Adams

David Adams is Head of the French National Reference Centre for Familial Amyloidotic Polyneuropathy (FAP), a position held since 2005, and has been the Coordinator of the French Network for FAP (CORNAMYL) since 2010 and built the European Network for ATTR amyloidosis (ATTReuNET) in 2015. He was made a Professor of Neurology at the Université Paris Sud, France in 1996. …

Location

Group membership

Hôpital Bicêtre, Hôpitaux universitaires Paris Sud AP-HP participates in the following groups…

Specialised Groups

Peripheral Nerve Disease

Cross Cutting Specialised Groups

Neuropathology
Genetics

Advisory Boards

Education
Hôpital Bicêtre, Hôpitaux universitaires Paris Sud AP-HP is registered with the Care and Trial Site Registry

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern