Educational Advisory Board

The Education/Training advisory board (EAB) comprises 80+ people who expressed some interest in education/training issues. A core group of 10 more involved members within the EAB has been formed. Priority was given to establishing a questionnaire in order to identify the existing resources and the unmet needs in terms of education and training. The question will be sent soon to the 61 HCP and will circulate within the ePAGs (European patient Advocacy group). In parallel, the first EURO-NMD and TREAT-NMD endorsed Neuromuscular Translational School was launched in July 2018 in Newcastle. Finally, the group continues to brainstorm in order to define the criteria for endorsement of other educational events.

 

Bobby Ancil* Muscular Dystrophy UK
Chiara Briani Azienda Ospedaliera – University of Padova
Gunnar Buyse University Hospitals Leuven, Neuromuscular Reference Centre
Andrea Calvo AOU Città della Salute e della Scienza di Torino
Jennifer Carli AP-HM
Teodora Chamova Expert Centre for Hereditary Neurologic and Metabolic Disorders
Kristl Claeys University Hospitals Leuven, Neuromuscular Reference Centre
Giacomo Comi Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Sandra Coppens Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Stefania Corti Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Liesbeth De Waele University Hospitals Leuven, Neuromuscular Reference Centre
Nicolas Deconinck Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Adela Della Marina Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Valeri Dhetz CHU NICE
Jordi Díaz Manera Hospital de la Santa Creu i Sant Pau
Sergio Esposito University Hospital “Luigi Vanvitelli”
Teresinha Evangelista Newcastle upon Tyne Hospitals NHS Foundation Trust
Massimiliano Filosto ASST “Spedali Civili”
Josep Gamez Hospital Universitari Vall d’Hebron
Malgorzata Gawel SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Paolo Girlanda AOU Policlinico “G.Martino” Messina
Nathalie Goemans University Hospitals Leuven, Neuromuscular Reference Centre
Kinga Hadzsiev University of Pécs
Anna Kaminska SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Heike Koelbel Childrens Clinic Essen University Hospital (University Hospital Germany)
Samuel Komoly University of Pécs
Anna Kostera-Pruszczyk* SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Norbert Kovacs University of Pécs
Ferenc Kover University of Pécs
Pauline LaHaut CHU NICE
Giuseppe Lauria Fondazione IRCCS, Istituto Neurologico C.Besta
Marta Lipowska SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Anna Lusakowska SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Edoardo Malfatti* Université Versailles-St-Quentin, Garches, France
Cecilia Jimenez Mallebrera* Hospital Sant Joan de Déu – Universidad de Barcelona
Michelangelo Mancuso Azienda Ospedaliera Universitaria Pisana (AOUP)
Adnan Manzur* Great Ormond Street Hospital
Nicolas Mavroudakis Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Anna Mazzeo AOU Policlinico “G.Martino” Messina
Bela Melegh University of Pécs
Viktor Molnar Semmelweis University
Tiziana Mongini Azienda Ospedaliera Universitaria Città della Salute  edella Scienza di Torino
Lenka Mrazova University Hospital Brno
Nuria Muelas Hospital Universitario y Politécnico La Fe
Wolfgang Müller-Felber Department of Pediatric Neurology, Dr.v. Hauner Childrens Hospital, Ludwig Maximilians University
Francina Munell Hospital Universitari Vall d’Hebron
Francesco Muntoni Great Ormond Street Hospital
Ferenc Nagy University of Pécs
Andrés Nascimento Hospital Sant Joan de Déu – Universidad de Barcelona
Carlos Ortez* Hospital Sant Joan de Déu – Universidad de Barcelona
Damjan Osredkar University Medical Center Ljubljana
Alessandro Padovani ASST “Spedali Civili”
Endre Pál University of Pécs
Massimo Pandolfo Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Livia Pasquali Azienda Ospedaliera Universitaria Pisana (AOUP)
Yann Péréon University Hospital Nantes
Zoltan Pfund University of Pécs
Anna Potulska-Chromik SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Ros Quinlivan* Queen’s Square, London, UK
Mary Quirke Oxford University Hospitals NHS Foundation Trust
Gauthier Remiche Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Carmelo Rodolico AOU Policlinico “G.Martino” Messina
Sabrina Sacconi CHU NICE
Iciar Sanchez Childrens Clinic Essen University Hospital (University Hospital Germany)
Maria Salvado Hospital Universitari Vall d’Hebron
Ulrike Schara Childrens Clinic Essen University Hospital (University Hospital Germany)
Monica Sciacco* Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Thomas Sejersen Karolinska Universitetssjukhuset (University Hospital Sweden)
Gabriele Siciliano Azienda Ospedaliera Universitaria Pisana (AOUP)
Piotr Szczudlik SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Agnes Till University of Pécs
Antonio Toscano AOU Policlinico “G.Martino” Messina
Philip Van Damme University Hospitals Leuven, Neuromuscular Reference Centre
Anneke van der Kooi AMC Amsterdam
Bruno Vandevelde AP-HM
Giuseppe Vita AOU Policlinico “G.Martino” Messina
Nicole Voermans* Raboud University, Nijmegen, The Netherlands
Stanislav Vohanka University Hospital Brno
Irene Volonghi ASST “Spedali Civili”
Judith Zima University of Pécs

(marked with an * : members of the executive sub-group)

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern