28 April 2022

[iphorm_popup id=”38″ name=”Blog”]Leave comments or suggest new posts by clicking here, please.[/iphorm_popup]

 

Read the posts here:


Rare Disease Day 2022
Uncategorized

Rare Disease Day 2022

Every year, Eurordis, the European Federation of Rare Disease Organizations, coordinates Rare Disease Day – the International Day for Rare...
Read More
Uncategorized

Expertise coverage by HCP

HCP Country HCP City HCP Name Rare Muscle Neuromuscular Junction Peripheral Neuropathies Motor Neuron Diseases Mitochondrial diseases Belgium Ghent University...
Read More
Call for Members: IRDiRC Task Force on Drug Repurposing Guidebook
Uncategorized

Call for Members: IRDiRC Task Force on Drug Repurposing Guidebook

The Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook to help developers (of all kinds)...
Read More
Welcome to our new members !
Promotional Recent activity

Welcome to our new members !

The ERN Euro-NMD coordination team would like to welcome our new members. We hope our new relationship will be a...
Read More
Annual Euro-NMD Board Meeting : Jan 24th & 25th
Uncategorized

Annual Euro-NMD Board Meeting : Jan 24th & 25th

The European Reference Network for Rare Neuromuscular Diseases Euro-NMD welcomes you on January, 24th & 25th, 2022  to the Annual...
Read More
Feedback on the 3rd Neuromuscular Translational Summer School !
Breaking News Recent activity

Feedback on the 3rd Neuromuscular Translational Summer School !

The 3rd Neuromuscular Translational Summer School took place online from 6 to 10 December, 2021. The aim was to understand...
Read More
World Muscle Society advice – Vaccines COVID-19
Breaking News Recent activity

World Muscle Society advice – Vaccines COVID-19

COVID-19 and people with neuromuscular disorders : Updated 3rd December 2021 The WMS has provided advice for people with neuromuscular...
Read More
Call for AFM-TELETHON Annual Research Grants is open !
Uncategorized

Call for AFM-TELETHON Annual Research Grants is open !

The French Muscular Dystrophy Association (AFM) funds research projects on neuromuscular genetic diseases (myopathies, Steinert’s myotonic dystrophy) mainly, but also...
Read More
Euro-NMD webinars : More to come !
Breaking News Promotional Recent activity

Euro-NMD webinars : More to come !

EURO-NMD webinars in association with ERN-RND and the European Academy of Neurology Our three entities have agreed to build a...
Read More
COVID-19 and Neuromuscular Patients
Breaking News COVID-19 Promotional Recent activity

COVID-19 and Neuromuscular Patients

Updated 3rd December 2021 The WMS has provided advice for people with neuromuscular disorders, and their healthcare providers since the...
Read More
Joint Transnational Call 2022
Breaking News Recent activity

Joint Transnational Call 2022

The European Joint Programme on Rare Diseases just pre-announced the Joint Transnational Call 2022, a funding opportunity for research projects...
Read More
ERICA WP5-Translation and Innovation
Breaking News Recent activity

ERICA WP5-Translation and Innovation

This work program covers the translational and innovative aspects of clinical research and hence will liaise with biotech and pharma...
Read More
Meet Professor Michelangelo Mancuso !
Breaking News Recent activity

Meet Professor Michelangelo Mancuso !

1. Tell us a little bit about yourself Soon after my residency programme in Pisa (Italy) (2000) I had the...
Read More
Euro-NMD awarded new CEF funding
Breaking News

Euro-NMD awarded new CEF funding

Euro-NMD successfully applied for the 2020 CEF (Connecting Europe Facility) Telecom eHealth Call, a flagship-funding programme of the Europe 2020...
Read More
MOOC on Translation research and Rare Diseases
Uncategorized

MOOC on Translation research and Rare Diseases

Euro-NMD is co-developing together with EATRIS (The European Infrastructure for translational medicine) a Massive Open Online Course (MOOC) on Translational...
Read More
Uncategorized

ERN-transversal Working Group on Pregnancy and Family Planning

The ERN-transversal Working Group on Pregnancy and Family Planning in rare and complex diseases is currently organising an ERN-wide survey....
Read More
Joint initiative between ERNs Euro-NMD, RND and Epicare
Recent activity

Joint initiative between ERNs Euro-NMD, RND and Epicare

The coming year will mark the end of the first five years of functioning of the European Reference Networks (ERNs)....
Read More
2021 Fall/Winter Grant Applications – FSHD SOCIETY
Uncategorized

2021 Fall/Winter Grant Applications – FSHD SOCIETY

The FSHD Society offers investigator-initiated research grants to support basic, translational and clinical-based research in facioscapulohumeral muscular dystrophy (FSHD). The...
Read More
LGMD Awareness Day – 30th September 2021
Uncategorized

LGMD Awareness Day – 30th September 2021

Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is intended to be an annual collaborative effort to globally raise awareness of individuals...
Read More
New article on Journal of Neuromuscular Diseases about patient-led FAIR Data Efforts to facilitate Research and Health Care
Patient Advisory Board Recent activity

New article on Journal of Neuromuscular Diseases about patient-led FAIR Data Efforts to facilitate Research and Health Care

The World Duchenne Organization and Duchenne Data Foundation have published their latest Research Article on the Journal of Neuromuscular Diseases...
Read More


 

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern