Within Screen4Care, an Innovative Medicines Initiative (IMI 2 JU), researchers are investigating medical specialists’ understanding, experience and attitudes regarding the...
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28 April 2022
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Medical Survey Screen4Care about Machine Learning
By A A
/ 21 June 2022
Within Screen4Care, an Innovative Medicines Initiative (IMI 2 JU), researchers are investigating medical specialists’ understanding, experience and attitudes regarding the...
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Protected: CPMS monitoring by Centre and by User
By A A
/ 21 June 2022
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What are EURO-NMD Centres and how can I find one?
By A A
/ 8 June 2022
The centres part of EURO-NMD (also know as "healthcare providers") can be found here. To be a member of the...
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What is EURO-NMD?
By A A
/ 8 June 2022
"EURO-NMD is a European reference network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related...
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Launch of a continuously open survey for ERNs HCPs to report Ukrainian refugees care
By A A
/ 24 May 2022
The ERNcare4ua.com website has recently launched a EU Survey to monitor the care delivered by ERNs to Ukrainian refugees. Despite...
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European Health Data Space (EHDS)
By A A
/ 6 May 2022
The European Commission launched the European Health Data Space (EHDS), one of the central building blocks of a strong European...
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The ERN Research Mobility Fellowships call
By A A
/ 6 May 2022
The call for Research Mobility Fellowships aims to support PhD students, Postdocs and medical doctors in training to...
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Call for new patient representatives to join Euro-NMD
By A A
/ 5 May 2022
In April 2022, 33 patient representatives from 23 patient organisations and 11 countries are involved in EURO-NMD. What is...
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Patient reported outcome measures (PROMs) survey
By A A
/ 29 April 2022
We are conducting a survey in order to get a better understanding on the knowledge and use of Patient-Reported Outcome...
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ERICA : Collaborative inter-ERN research wall
By A A
/ 29 April 2022
ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce...
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CPMS: simplifying the access request process
By A A
/ 27 April 2022
From DG Health "DG Health is looking for solutions that guarantee a high level of security and easier access to...
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ERN Euro-NMD Exchange Programme 2021-2022
By A A
/ 7 April 2022
Following the ERN's motto: "knowledge travels, not the patient" we are pleased to announce that the EU is funding an...
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EJPRD : The ERN Research Training Workshops call
By A A
/ 1 April 2022
Aim of the call The goal of the workshops is to train researchers and clinicians affiliated to ERN-Full Members or – Affiliated...
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Survey for patients: Unmet needs of rare and complex diseases related to pregnancy and family planning for patients and caregivers
By A A
/ 22 March 2022
ERN Euro-NMD is participating in a transversal cross-ERN Study Group on Pregnancy and Family Planning in Rare, low prevalence and...
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#ERNcare4Ua – Solidarity with Ukraine
By A A
/ 10 March 2022
The European Reference Networks have set up a support platform to help Rare Disease patients and their families caught by...
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Regulatory harmonisation of clinical trials in the EU and launching of the Clinical Trials Information System
By A A
/ 7 March 2022
From EMA’s news webpage: On 31 January 2022, the Clinical Trials Regulation (CTR) will come into application harmonising the submission, assessment and...
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