28 April 2022

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Medical Survey Screen4Care about Machine Learning
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Medical Survey Screen4Care about Machine Learning

Within Screen4Care, an Innovative Medicines Initiative (IMI 2 JU), researchers are investigating medical specialists’ understanding, experience and attitudes regarding the...
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Protected: CPMS monitoring by Centre and by User
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Protected: CPMS monitoring by Centre and by User

×This post is password protected. To view it please enter your password belowPassword: Submit
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July 7th
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July 7th

Webinar Euro-NMD, ERN-RND and EAN Delivered by Mario Pereira-Gomes and Arnauld Klein, PhDs Myology Research Centre, Inserm, Sorbonne University, Paris​...
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What are EURO-NMD Centres and how can I find one?
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What are EURO-NMD Centres and how can I find one?

The centres part of EURO-NMD (also know as "healthcare providers") can be found here. To be a member of the...
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What is EURO-NMD?
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What is EURO-NMD?

"EURO-NMD is a European reference network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related...
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Confirm
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Confirm

Your subscription to the EURO-NMD newsletter is confirmed.   To manage your subscription please visit: https://ern-euro-nmd.eu/newsletter-signup/  
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Unsubscribe from the newsletter
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Unsubscribe from the newsletter

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Launch of a continuously open survey for ERNs HCPs to report Ukrainian refugees care
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Launch of a continuously open survey for ERNs HCPs to report Ukrainian refugees care

The ERNcare4ua.com website has recently launched a EU Survey to monitor the care delivered by ERNs to Ukrainian refugees. Despite...
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European Health Data Space (EHDS)
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European Health Data Space (EHDS)

The European Commission launched the European Health Data Space (EHDS), one of the central building blocks of a strong European...
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The ERN Research Mobility Fellowships call
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The ERN Research Mobility Fellowships call

    The call for Research Mobility Fellowships aims to support PhD students, Postdocs and medical doctors in training to...
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Call for new patient representatives to join Euro-NMD
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Call for new patient representatives to join Euro-NMD

In April 2022, 33 patient representatives from 23 patient organisations and 11 countries are involved in EURO-NMD.   What is...
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Patient reported outcome measures (PROMs) survey
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Patient reported outcome measures (PROMs) survey

We are conducting a survey in order to get a better understanding on the knowledge and use of Patient-Reported Outcome...
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ERICA : Collaborative inter-ERN research wall
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ERICA : Collaborative inter-ERN research wall

ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce...
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Forum NMD
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Forum NMD

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CPMS: simplifying the access request process
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CPMS: simplifying the access request process

From DG Health "DG Health is looking for solutions that guarantee a high level of security and easier access to...
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ERN Euro-NMD Exchange Programme 2021-2022
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ERN Euro-NMD Exchange Programme 2021-2022

Following the ERN's motto: "knowledge travels, not the patient" we are pleased to announce that the EU is funding an...
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EJPRD : The ERN Research Training Workshops call
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EJPRD : The ERN Research Training Workshops call

Aim of the call The goal of the workshops is to train researchers and clinicians affiliated to ERN-Full Members or – Affiliated...
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Survey for patients: Unmet needs of rare and complex diseases related to pregnancy and family planning for patients and caregivers
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Survey for patients: Unmet needs of rare and complex diseases related to pregnancy and family planning for patients and caregivers

ERN Euro-NMD is participating in  a transversal cross-ERN Study Group on Pregnancy and Family Planning in Rare, low prevalence and...
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#ERNcare4Ua – Solidarity with Ukraine
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#ERNcare4Ua – Solidarity with Ukraine

The European Reference Networks have set up a support platform to help Rare Disease patients and their families caught by...
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Regulatory harmonisation of clinical trials in the EU and launching of the Clinical Trials Information System
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Regulatory harmonisation of clinical trials in the EU and launching of the Clinical Trials Information System

From EMA’s news webpage: On 31 January 2022, the Clinical Trials Regulation (CTR) will come into application harmonising the submission, assessment and...
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The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern