28 April 2022

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Feb 16th
Breaking News euro-nmd Promotional Recent activity

Feb 16th

This is a webinar  organized by EURO-NMD in partnership with EAN and ERN-RND. BASIC WEBINARS SERIES THEME: Caveolae and Bin1 form...
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Who’s who in EURO-NMD
euro-nmd

Who’s who in EURO-NMD

Name Institution Adriano Chiò University Hospital Città della Salute e della Scienza of Torino, Italy Albert C. Ludolph Universitätsklinikum Ulm...
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Professionals

Protected: Documentation download

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AFM-Téléthon : Scientific and Medical Research Call for Proposals for 2023
Breaking News Promotional Recent activity

AFM-Téléthon : Scientific and Medical Research Call for Proposals for 2023

The development of new therapeutic concepts for rare diseases and the understanding of the causes and mechanisms of neuromuscular diseases...
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Official 5 years EC-evaluation of ERNs and their members
About ERNs Breaking News Promotional Recent activity

Official 5 years EC-evaluation of ERNs and their members

The official EC-evaluation process of the ERNs and their Full Members as per Commission implementing decision 2014/287/EU Art. 14-15 started officially...
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HCP list with CPMS code
About ERNs

HCP list with CPMS code

CODE INSTITUTION OFFICIAL NAME NAME IN ENGLISH CITY COUNTRY AT04 Medizinische Universität Innsbruck MEDICAL UNIVERSITY INNSBRUCK INNSBRUCK AUSTRIA AT20 Sozialmedizinisches...
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ERNs support “call to action” – Czech presidency of the council of the European Union
Promotional Recent activity

ERNs support “call to action” – Czech presidency of the council of the European Union

The Czech Presidency of the EU Council organised the Expert Conference on Rare Diseases in Prague on 25-26 October 2022...
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Uncategorized

EJPRD: The Joint Transnational Call 2023

The  European Joint Programme on Rare Diseases launched on Dec 12th the Joint Transnational Call 2023, a funding opportunity for research projects...
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EURO-NMD Annual Meeting 2023
Breaking News euro-nmd Promotional Recent activity

EURO-NMD Annual Meeting 2023

We are very delighted to announce the next EURO-NMD Annual Meeting will take place on February 2nd and 3rd, 2023...
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FSHD Society’s Masterclass on demand for a fee
Professionals Rare muscle diseases (genetic, inflammatory, and metabolic) Recent activity Uncategorized

FSHD Society’s Masterclass on demand for a fee

A state-of-the-art, on-demand CME course for clinicians involved with the diagnosis and management of care for patients with facioscapulohumeral muscular...
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Amicus-sponsored Young Investigator Excellence in Research programme in Pompe disease
Recent activity

Amicus-sponsored Young Investigator Excellence in Research programme in Pompe disease

Amicus Therapeutics is sponsoring the "Young Investigator Excellence in Research Programme for research focused on late-onset Pompe disease (LOPD) or...
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The brand new European Society for Mitochondrial Research and Medicine (E-Mit)
Breaking News Promotional Recent activity

The brand new European Society for Mitochondrial Research and Medicine (E-Mit)

We are delighted to introduce to you the European Society for Mitochondrial Research and Medicine (E-Mit) reachable at https://www.e-mit.org/. The...
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EJPRD : New free MOOC “Introduction to translational research for Rare Diseases”
Promotional Recent activity Uncategorized

EJPRD : New free MOOC “Introduction to translational research for Rare Diseases”

On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week...
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Uncategorized

Getting involved in the new multidisciplinary care work group at ERN EURO-NMD

Our new full member from Norway is currently building a new work group on multidisciplinary care and looking for members...
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The new Phenopackets ISO standard facilitates data sharing

The International Organization for Standardization (ISO) has published Phenopackets, the first clear computational way to responsibly share individual patient traits,...
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Uncategorized

Brescia Workshop on Neuromuscular Diseases

On 22-24 September 2022, at the Centro Congressi Paolo VI took place the Brescia Workshop on Neuromuscular Diseases. This event...
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FAIR Data Sharing Without Oversharing
Promotional Recent activity

FAIR Data Sharing Without Oversharing

Duchenne Parent Project and European Reference Network for Neuromuscular Diseases can now begin leveraging their FAIR data to benefit People...
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The ERN Research Mobility Fellowships call
Promotional Recent activity

The ERN Research Mobility Fellowships call

The Research Mobility Fellowships will open on October 3rd, 2022 The call for Research Mobility Fellowships aims to support PhD...
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Protected: MFM Delphi Round 1
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Protected: MFM Delphi Round 1

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Replies and comments to CPMS Blog entries
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Replies and comments to CPMS Blog entries

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The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern