EURO-NMD Board & Working Group Meetings – Winter 2020

8 – 11 December 2020

EURO-NMD network stakeholders – please save the date!

8-11 December 2020


Our next board meeting and associated group meetings is now scheduled to take place in early December 2020.

As with all meetings being held in this current crisis we will be holding this online via a series of virtual meetings and larger scale webinar style events spread over the days.

Please save the date and we will have more information about the schedule of events, speakers, programmes and of course how to connect.

Please note: the Mitochondrial Working Group will be scheduling their meeting in early 2021.


Closing date for registrations – 30th November!


Our Winter 2020 Working Group Meetings and Board Meeting will be held online!

Please note: All times are in CET (Paris time)


Individual agendas and information about each meeting are available below by clicking on the meeting name – alternatively download a PDF of the meeting


Tuesday 8th December 2020
Disease Working Groups and Cross-cutting Diagnostic Working Groups

Imaging Working Group
Led by Pr. Pierre Carlier

Please register for the meeting before 30th November.

Register here


Wednesday 9th December 2020
Disease Working Groups and Cross-cutting Diagnostic Working Groups

Peripheral Nerve Work Group
Led by Pr. Davide Pareyson
Please register before 30th November

Register here

Muscle Disease Work Group
Led by Pr. Marianne de Visser
Please register for this meeting before 30th November

Register here


Thursday 10th December 2020
Disease Working Groups and Cross-cutting Diagnostic Working Groups

Neuromuscular Junction Work Group
Led by Dr. Jackie Palace
This meeting is by invitation only
Please register before 30th November

Register here

Genetics Work Group
Led by Prof. Alessandra Ferlini

Please register before 30th November

Register here


Friday 11th December
Educational Board, Patient Advisory Board & Main Board Meeting

Educational Board
Led by Jean-Philippe Plançon

Please register before 30th November

Register here

Patient Advisory Board
Led by Fançois Lamy

Please note this meeting is by invitation only
Register for this meeting before 30th November

Register here

EURO-NMD Board Meeting Winter 2020

EURO-NMD Board Meeting Winter 2020
Led by Dr. Teresinha Evangelista
This meeting is for Board Members or their representative only
Please register before 30th November

Register here
 

Board Meeting Agenda

17.00 – 17.05 1 Welcome
by Teresinha Evangelista
17.05 – 17.35 2 ERN Monitoring Process
a. Introducing the systems and objectives
b. Results and difficulties of the last monitoring round
c. Discussion
17.35-17.50 3 Loss of Membership
d. Procedure in case of noncompliance of Healthcare Providers
e. (Discussion around draft document from EC)
17.50-18.55 4 Current ERN Projects
f. Guidelines development
g. Registry
h. Educational Board and the
i. “Training and Education Priority Document”
18.55-19.00 5 Closure/Photo Call
j. by Teresinha Evangelista

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern