Our next board meeting and associated group meetings is now scheduled to take place in early December 2020. As with all meetings being held in this current crisis we will be holding this online via a series of virtual meetings and larger scale webinar style events spread over the days. Please save the date and we will have more information about the schedule of events, speakers, programmes and of course how to connect.
Please note: the Mitochondrial Working Group will be scheduling their meeting in early 2021.
Closing date for registrations – 30th November!
Our Winter 2020 Working Group Meetings and Board Meeting will be held online!
Please note: All times are in CET (Paris time)
Individual agendas and information about each meeting are available below by clicking on the meeting name – alternatively download a PDF of the meeting
Tuesday 8th December 2020 Disease Working Groups and Cross-cutting Diagnostic Working Groups
Wednesday 9th December 2020 Disease Working Groups and Cross-cutting Diagnostic Working Groups
Thursday 10th December 2020 Disease Working Groups and Cross-cutting Diagnostic Working Groups
Friday 11th December Educational Board, Patient Advisory Board & Main Board Meeting
Board Meeting Agenda
|17.00 – 17.05||1||Welcome by Teresinha Evangelista|
|17.05 – 17.35||2||ERN Monitoring Process a. Introducing the systems and objectives b. Results and difficulties of the last monitoring round c. Discussion|
|17.35-17.50||3||Loss of Membership d. Procedure in case of noncompliance of Healthcare Providers e. (Discussion around draft document from EC)|
|17.50-18.55||4||Current ERN Projects f. Guidelines development g. Registry h. Educational Board and the i. “Training and Education Priority Document”|
|18.55-19.00||5||Closure/Photo Call j. by Teresinha Evangelista|