Translational Summer School 2020 POSTPONED!

6 – 10 July 2020

We are sad to announce that we have taken the difficult decision to postpone the 2020 Translational Summer School which was due to be held in Leiden in July.

We fully anticipate that this will now take place in July 2021.

Logistically, the week sees numerous speakers traveling to the summer school to deliver their topics, catering and accommodation needs to be reliably available and the attendees able to get to the venue. All of these aspects have become much less certain it the current crisis.

It would irresponsible of us in so many ways to attempt to run the summer school when the situation is so volatile.

We sincerely apologise for any inconvenience this may have caused and we will be making further announcements about 2021 Summer School shortly.

– Organised in collaboration with TREAT-NMD


  • Facilitate the clinical development of therapies for NMDs


  • Educate clinicians and researchers working in the NMD field on aspects relevant for translational therapy development:
    • Bench to bedside research
    • Regulatory system
    • Clinical trials
    • Outcome measures
    • Patient communication
    • Registries and biobanks
    • Biomarkers and -omics
  • Outline and showcase how networks like EURO-NMD and TREAT-NMD facilitate therapy development
    • Standards of care
    • Clinical trial tools
    • Outcome measure development
    • Interaction with stakeholders
Annemieke Aartsma-Rus (Leiden University Medical Center, LUMC, the Netherlands & John Walton Muscular Dystrophy Research Centre, Newcastle University, UK)
Teresinha Evangelista (Institut de Myologie, Group Hospitalier Pitié-Salpêtrière, Paris, France)
Silvere van der Maarel (Leiden University Medical Center, LUMC, the Netherlands)
Andoni Urtizberea (FILNEMUS, Filière Nationale, Neuromusculaire, Paris, France)

Summer School 2020 – Draft Programme

Please note: This programme is still in draft mode and as such may be subject to change. All of the people mentioned in the programme have already agreed to help with the delivery of this year’s Summer School.

Leiden is situated in the county of South-Holland, between The Hague and Amsterdam which is approximately 30 minutes away. The distance between Leiden and the North Sea coast is 12 kilometres. The historic compact city, which has lots of attractions within walking distance, links the Bulb Region and the Green Heart.

One of Leiden’s main features is immediately noticeable: the water. Leiden has the most water flowing within its gates after Amsterdam. Due to its location on the edge of the Holland Lake District (Hollandse Plassengebied), various boating routes for pleasure andtouring pass through Leiden and its vicinity. The water surface of the Holland Lake District stretches further than the Frisian lakes. Magnificent boating routes pass over the Old Rhine and the Vliet, straight through the historic inner city, from the onelake area to the other.

No other city in the Netherlands has so many famous museums within walking distance from each other. Master pieces from Rembrandt and Lievens, dinosaur skeletons, krises from Indonesia, an anatomical theatre, an Egyptian temple, treasures from Japan, the botanical garden where the first tulips in the Netherlands grew and a journey of discovery through the human body: Leiden’s museums offer a surprising range of nature, art and culture.

Anyone walking through Leiden will sense the energy and atmosphere that can make meetings so special, in the inner city, with a large variety of stores on offer, but also for example in the Bio Science Park, which is buzzing with innovations thanks to the collaboration between companies, theBorough and knowledge institutions.

Arriving by Air

Leiden city is ideally situated: only a stone’s throw from large centres such as The Hague and Amsterdam. The city is within easy reach from abroad, with Schiphol airport 20 minutes away and the smaller Rotterdam The Hague Airport 25 minutes away.


Leiden is easily accessible by car due to its location between the A4 and A44 motorway. The inner city is mainly car-free. There are more than three thousand car parking spaces arranged in a circle around the historic heart, spread across various multi-story and ground-level car parks.

Public Transport

Leiden is very easy to reach by public transport. Trains from all directions stop at Leiden central station. The Hague is ten minutes away by train and Amsterdam Central Station only 35 minutes. It is a short stroll from the station to the inner city. There are also high frequency bus services to virtually all areas within the city and its vicinity.

Registration fees:
General participant – €100
Industry participant – €1000

New for 2020!
This fee now also includes accommodation (& meals) for the duration of the course.

Attendees will be responsible for arranging and paying for their travel to and from Leiden.

Apologies but further applications are not being taken at this time.


Leiden University Medical Center
Albinusdreef 2
The Netherlands

Further details

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit