National Limb Girdle Muscular Dystrophy Conference 2019

30 August – 2 September 2019

The mission of this conference is to provide momentum to emerging treatments. The National Limb Girdle Muscular Dystrophy Conference exists to demonstrate to venture capitalists and biotechs that the LGMD patient community is robust, mobilized, and ready to aggressively advocate for effective treatments that are developed. The nation’s leading neurologists in Limb Girdle Muscular Dystrophy will be present along with major biotech companies on the cutting edge of emerging research. The goal is to find treatments that are fast, effective, and safe for all forms of LGMD. Limb Girdle Muscular Dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs. Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually due to loss of ambulation.

Venue

Hyatt Regency Chicago
Chicago
Illinois
USA

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern