Please note this conference has been postponed until 2021!
Together Even Stronger 2021!
All people with myotubular myopathy or other centronuclear myopathies, their families, carers, doctors and therapists are warmly invited to come to Bad Nauheim from May 21st to 24th.
There will be a good mix of scientific and medical lectures and workshops on care products and everyday life. A funny kids and teens program is offered along the way. On Sunday there will be an exciting family outing together.
The event is organised in co-operation with partner organisations from UK, Spain, Italy, Poland , and the USA. Conference languages are German and English.