The Duchenne Data Foundation, in collaboration with the World Duchenne Organization, is
launching the 2021 edition of the Duchenne Patient Academy (DPA). In this intensive training
session, patient advocates receive training and updates to build a strong base for current and future
global advocacy. Applications are now open and closes on November 9.
Through connecting leading experts in their fields, Duchenne Patient Academy aims to contribute a unified and strong voice to coordinate the global advocacy strategy of the community. Participants develop a deeper understanding of the research, drug development, regulatory, policy and global frameworks in the DMD/BMD community that define best practices of international advocacy to drive research and care.
From Tuesday November 30 to Saturday December 4, the Duchenne Patient Academy will consist of 2,5-hour webinars during the week, with a 4-hour training session on the Saturday. The final agenda, consisting of expert speaker presentations and interactive sessions, will be sent to the participants.