Applications open for Duchenne Patient Academy 2021

30 November – 4 December 2021

The Duchenne Data Foundation, in collaboration with the World Duchenne Organization, is
launching the 2021 edition of the Duchenne Patient Academy (DPA). In this intensive training
session, patient advocates receive training and updates to build a strong base for current and future
global advocacy. Applications are now open and closes on November 9.

  • Duchenne Patient Academy 2021 will consist of 2,5-hour webinars during the week, with a 4-hour training session on the Saturday.
  • The agenda combines both expert speaker presentations and interactive sessions.
  • Participants are required to prepare for the sessions by completing the assignments and pre-reads shared in advance.

Goal

Through connecting leading experts in their fields, Duchenne Patient Academy aims to contribute a unified and strong voice to coordinate the global advocacy strategy of the community. Participants develop a deeper understanding of the research, drug development, regulatory, policy and global frameworks in the DMD/BMD community that define best practices of international advocacy to drive research and care.

Details

From Tuesday November 30 to Saturday December 4, the Duchenne Patient Academy will consist of 2,5-hour webinars during the week, with a 4-hour training session on the Saturday. The final agenda, consisting of expert speaker presentations and interactive sessions, will be sent to the participants.

Requirements

  • Full participation in all webinars is required.
  • Participants are required to prepare for the sessions by completing the assignments and pre-reads shared in advance.
  • Estimated time commitment is 17 hours in total during the 5-day course including preparation.
  • A good knowledge of English and a strong commitment is essential to participate in the training and discussions.

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern