All ePAG meeting

14 – 17 November 2022

All ePAG meeting is going to be an online meeting held from 14 to 17 November 2022.

This year they have put together five short online sessions peppered throughout one week, from Monday to Thursday. Each day, they will have a session at 10.00-11.00 CET.

On Thursday, there will be an additional session from 11.15- 12.30 CET. To know more check the meeting’s agenda.

What is the theme of this year’s All-ePAG meeting?

The theme for this year is “How to get better at listening to your community to represent their needs and perspectives”.

Throughout the week we will reflect on why listening to your community matters, how to best capture my community’s voice and where to start and celebrate together some excellent examples from different perspectives.

This year’s theme was inspired by a guide co-developed by EURORDIS and the ePAG community: Speak Up. Listen Up. Follow-Up guide: A brief guide for rare disease patient organisations on how to listen to the community. You can also find this guide attached. We encourage you to read it and share it within your ERN.

How many sessions can I join?

As many as you would like! We would be happy to have you join all of them, but you are free to only attend the ones you are interested in.

Note that: There is no registration form.You can find the links for each session in the All-ePAG meeting agenda attached to this email.

Please save the date and block your calendars, since there is no registration we will not be sending calendar invitations to participants.



The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
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