Leticia San José

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Jacques Salama is the father of a young man with Duchenne Muscular Dystrophy. After his son was diagnosed with DMD in 1990, he joined the AFM-Téléthon. He later became its General Delegate for scientific policy, and joined the Board of Directors of Genethon in 1996. In 1999, he became the General Secretary of the Institute of Myology in France, an institute dedicated to research, care and education on muscle function and muscle diseases. There, he worked closely with the scientists developing medical imaging applied to muscle diseases. To this day, he appreciates the value of these new techniques of imaging to provide the possibility of non-invasive tools for diagnosis and follow-up of emerging therapies; they are of fundamental importance for the future development of drugs.

Leticia's Network Involvement

Leticia is involved in these different areas of the network...
Muscle Diseases


The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern