Judit Varadine Csapo

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Judit Varadine Csapo’s younger son was diagnosed with Facioscapulohumeral Muscular Dystrophy (FSHD) 10 years ago.

After the genetic testing of the family, Judit Varadine Csapo learnt that she also is affected by the same disease. At the time, there was no information about rare diseases in Hungarian and no patient organisation in Hungary.

Subsequently, she founded Angyalszarnyak, the Hungarian Muscle Dystrophy Association. With approximately 500 members, the association aims at informing patients in Hungarian and helping them to find each other.

Judit Varadine's Network Involvement

Judit Varadine is involved in these different areas of the network...
PAB Member - ePAG Muscle Diseases

Organisation

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern