Category: Recent activity

Application for our translational summer school opens

We are delighted to announced that applications are now being taken for our five-day summer school which will be held in Newcastle, UK 2-6th July 2018. The course has been developed for researchers and clinicians interested in translational research an …

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EURO-NMD presents about care guidelines at TREAT-NMD Conference

As part of the care session in the TREAT-NMD conference Teresinha Evangelista talked about how our ERN can help develop and implement care guidelines for neuromuscular diseases. After a quick overview, Teresinha looked at how the ERN reduces geographic …

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EURO-NMD poster highlighted at WMS

We are delighted to announce that the EURO-NMD poster was chosen for the poster highlights session of the recent World Muscle Society conference in St Malo, France. Teresinha Evangelista presented the poster which focused on the structure, function and …

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We’ve published our first newsletter!

We are delighted to announce that we have recently published our first newsletter which was sent out directly to over 200 people. We aim to publish our newsletter monthly to highlight recent ERN developments around both the network and platforms. We wi …

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EAN features interview with Mary Reilly

The EAN (home of neurology) website features an inteview with Mary Reilly who is President of the Peripheral Nerve Society (PNS) and one of our Executive Committee members. In the interview Mary touches upon the exciting developments around inflammator …

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A ray of hope for patients with rare & complex diseases, their families & doctors

This video that originates from the Commission’s website gives a comprehensive overview of the networks whilst also introducing a number of concepts, ideas and key people. Please be aware that this video will require a large amount of data to be shown …

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Save the date – 29-30 November

Save the date for our meeting in Freiburg! We’re currently developing an exciting programme for this our first face to face meeting. This will be an excellent opportunity for all attendees to forge those all important new network relationships during t …

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3rd conference on European Reference Networks – a report

The 3rd official European Reference Network (ERN) conference took place in Vilnius, Lithuania, on the 9th of March. The event was well attended by around 600 healthcare providers, patient representatives, policy makers and health experts. The conferenc …

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supported by the

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern