First CPMS Grand Round: access on demand to the recording on CPMS
The First CPMS Grand Round was a success according to the feedback that we have received and that we will post on this site very soon. In the meantime we want to explain how to access the recorded vid …
Current Newsletter
ERN background
Why rare diseases?
20 Feb 2019Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
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What are ERNs?
20 Feb 2019 -
Adding value for patients and professionals
20 Feb 2019 -
How ERNs are approved?
20 Feb 2019
Recent activities
Webinar Nov 18 4PM Paris
25 Oct 2021Nov, 18 2021 04:00 PM in Paris delivered by Kristl Claeys
Upcoming events
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MYO-MRI Imaging in Neuromuscular Disease Conference 2021
8 November 2021 -
Educational Webinar 1 – Current research services available for the rare diseases community
8 November 2021 -
Muscle & Statins
18 November 2021 -
Applications open for Duchenne Patient Academy 2021
30 November 2021 -
Translational ‘Summer’ School 2021
6 December 2021
- View complete list of events -
