In April 2022, 33 patient representatives from 23 patient organisations and 11 countries are involved in EURO-NMD. What is the role of patient representatives? Euro-NMD patient representatives repre …
Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
Within Screen4Care, an Innovative Medicines Initiative (IMI 2 JU), researchers are investigating medical specialists’ understanding, experience and at …
