The Executive Committee is responsible for the overall policy and strategic direction of the network whilst overseeing activities and progress. The committee also works closely with the Board of Heatlhcare Providers to ensure any decisions made are implemented fully and subsequently promoted to ensure maximum effectiveness.

The committee is also responsible for the establishment of contacts with industry and regulatory agencies and the developement of a viable sustainability strategy for the network.
 


 

Executive Committee Members

 

Alessandra Ferlini

University Hospital St. Anna
Italy

Bjarne Udd

Tampere Neuromuscular Center, Tampere University Hospital
Finland

François Lamy

AFM Téléthon
France

Hanns Lochmüller

John Walton Muscular Dystrophy Research Centre
UK

Andoni Urtizberea

J. Andoni Urtizberea

University Hospital Raymond-Poincaré APHP
France

Jan Kirschner

Medical Center - University of Freiburg
Germany

Leonard van den Berg

University Medical Centre Utrecht
Netherlands

Marianne de Visser

Netherlands

Mary Reilly

University College London Hospitals NHS Trust
UK

Rita Horvath

John Walton Muscular Dystrophy Research Centre
UK

Teresinha Evangelista

John Walton Muscular Dystrophy Research Centre
UK